When I was just 16 years old, I was told that I would never be able to carry a child and I would need treatment to have intimate relationships. I am one of the 1 in 5,000 women born with Mayer-Rokitansky-Kuster-Hauser Syndrome, MRKH for short….
On March 19th I attended the 11th annual MRKH conference here at Boston Children’s Hospital. The conference was sponsored by the Center for Young Women’s Health. It was the first medical conference I’ve ever attended, and so I didn’t really know what to expect. I…
On October 19, I joined many girls at the 8th Annual MRKH Conference at Boston Children’s Hospital. This was my first conference at the hospital, and I was very excited to learn that girls had the opportunity to meet others who share the same condition….
Eight years ago I had one of those experiences that will go down in history as one of the most rewarding professional and personal experiences of my life. It all started while I was moderating a chat for young women diagnosed with MRKH (an acronym…
Last Saturday I helped register participants at our 6th annual MRKH conference. MRKH (short for Mayer-von-Rokitansky-Kuster-Hauser Syndrome) is a rare disorder which is present at birth and is estimated to affect 1 out of every 4,000-5,000 female babies’ reproductive tracts. I’ve helped at past MRKH…