Tag Archives: MRKH

Humbled by MRKH

On March 19th I attended the 11th annual MRKH conference here at Boston Children’s Hospital. The conference was sponsored by the Center for Young Women’s Health. It was the first medical conference I’ve ever attended, and so I didn’t really know what to expect. I…

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What Do You Want to Do With Your Life?

You don’t actually realize that as you grow up your surroundings are causing you to subconsciously configure your future. You watch as everyone grows up, goes to college, falls in love, gets married, has kids, and lives happily ever after. Keep in mind, this scenario…

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How You Become A Parent Doesn’t Matter

I’m from London in the UK, and I have MRKH. At 17 I was told I had no uterus and I knew something else wasn’t quite right. I was sure I had the condition. I was diagnosed with MRKH at age 20, during my second…

Dani

A Defining Moment

There have been a few defining moments in my high school career, but so far none compare to what happened during my sophomore year. The defining moment I’m going to tell you about wasn’t when I found out I had celiac disease and couldn’t eat…

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My First MRKH Conference

On October 19, I joined many girls at the 8th Annual MRKH Conference at Boston Children’s Hospital. This was my first conference at the hospital, and I was very excited to learn that girls had the opportunity to meet others who share the same condition….

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MRKH Conference 2013

Eight years ago I had one of those experiences that will go down in history as one of the most rewarding professional and personal experiences of my life. It all started while I was moderating a chat for young women diagnosed with MRKH (an acronym…

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MRKH Conference 2012

A couple of weeks ago I helped out at the annual MRKH conference here at Boston Children’s Hospital. For those who don’t know, MRKH (Mayer Rokitansky Kuster Hauser Syndrome) is a disorder that occurs in 1 out of every 5,000 live female births where the…

Girls at a Conference

MRKH Conference 2011

Last Saturday I helped register participants at our 6th annual MRKH conference. MRKH (short for Mayer-von-Rokitansky-Kuster-Hauser Syndrome) is a rare disorder which is present at birth and is estimated to affect 1 out of every 4,000-5,000 female babies’ reproductive tracts. I’ve helped at past MRKH…

Private Practice

MRKH Featured On ABC’s Private Practice

If you happened to watch the show Private Practice last week on ABC, you would have learned a little bit about MRKH, which is an acronym for Mayer-von-Rokitansy-Kuster-Hauser syndrome. One of the story lines was about a 20 something woman with MRKH who had an…