There have been a few defining moments in my high school career, but so far none compare to what happened during my sophomore year. The defining moment I’m going to tell you about wasn’t when I found out I had celiac disease and couldn’t eat…
Eight years ago I had one of those experiences that will go down in history as one of the most rewarding professional and personal experiences of my life. It all started while I was moderating a chat for young women diagnosed with MRKH (an acronym…
Last Saturday I helped register participants at our 6th annual MRKH conference. MRKH (short for Mayer-von-Rokitansky-Kuster-Hauser Syndrome) is a rare disorder which is present at birth and is estimated to affect 1 out of every 4,000-5,000 female babies’ reproductive tracts. I’ve helped at past MRKH…
If you happened to watch the show Private Practice last week on ABC, you would have learned a little bit about MRKH, which is an acronym for Mayer-von-Rokitansy-Kuster-Hauser syndrome. One of the story lines was about a 20 something woman with MRKH who had an…
This past weekend Erica, Dennisse, and I helped out at Childrens Hospital’s 4th annual MRKH conference. Many of you may be wondering what these letters stand for. Mayer Rokitansky Kuster Hauser Syndrome (better known as MRKH) is a congenital disorder of the female reproductive tract,…