Fanny, pussy, vajayjay, “front bum” (yes, front bum)… just a few of the many terms we’ve created to describe our nether regions; perhaps because some sound sexier than real anatomical terms, or maybe because using nicknames for our lady bits has somehow become more socially…
When I was just 16 years old, I was told that I would never be able to carry a child and I would need treatment to have intimate relationships. I am one of the 1 in 5,000 women born with Mayer-Rokitansky-Kuster-Hauser Syndrome, MRKH for short….
This blog has been brewing in my brain for quite some time now. My fingertips have been itching to write it, and yet grasping onto all of feelings and memories and ideas that are swirling around in my head and putting them all into words…
On March 19th I attended the 11th annual MRKH conference here at Boston Children’s Hospital. The conference was sponsored by the Center for Young Women’s Health. It was the first medical conference I’ve ever attended, and so I didn’t really know what to expect. I…
You don’t actually realize that as you grow up your surroundings are causing you to subconsciously configure your future. You watch as everyone grows up, goes to college, falls in love, gets married, has kids, and lives happily ever after. Keep in mind, this scenario…
I’m from London in the UK, and I have MRKH. At 17 I was told I had no uterus and I knew something else wasn’t quite right. I was sure I had the condition. I was diagnosed with MRKH at age 20, during my second…
There have been a few defining moments in my high school career, but so far none compare to what happened during my sophomore year. The defining moment I’m going to tell you about wasn’t when I found out I had celiac disease and couldn’t eat…
On October 19, I joined many girls at the 8th Annual MRKH Conference at Boston Children’s Hospital. This was my first conference at the hospital, and I was very excited to learn that girls had the opportunity to meet others who share the same condition….
Eight years ago I had one of those experiences that will go down in history as one of the most rewarding professional and personal experiences of my life. It all started while I was moderating a chat for young women diagnosed with MRKH (an acronym…
A couple of weeks ago I helped out at the annual MRKH conference here at Boston Children’s Hospital. For those who don’t know, MRKH (Mayer Rokitansky Kuster Hauser Syndrome) is a disorder that occurs in 1 out of every 5,000 live female births where the…